Articles tagged with: Rare Diseases Supplement
Health union for children with rare diseases Partner Content
01 Mar EU Institutions
Health union for children with rare diseases
Responsibility for the healthcare system is anchored in the relationship between those directly in charge, the citizens and patients, families and surrounding society, writes Pernille Weiss MEP
Setting the scene for the future of people living with rare diseases Partner Content
28 Feb
Setting the scene for the future of people living with rare diseases
The time is now to build partnerships across the medicine lifecycle and patient journey to further strengthen the rare disease eco-system, writes Ricardo Marek
European collaboration in practice Partner Content
27 Feb
European collaboration in practice
Despite the setbacks caused by the war in Ukraine, officials, clinicians and patient groups are working hard to support the rare disease patient community in the country, writes Anastasiia Saliuk
The European Health Data Space and rare diseases Partner Content
23 Feb
The European Health Data Space and rare diseases
The vast majority of rare disease patients are willing to share their data to improve diagnosis of their disease and develop new treatments. Let’s make sure that data sharing becomes a reality, writes Tilly Metz
Rare Diseases Day: How the French Presidency can change the rare disease landscape Partner Content
28 Feb
Rare Diseases Day: How the French Presidency can change the rare disease landscape
The Parliament Magazine spoke to French and European policymakers to find out.