Articles tagged with: European Rare Disease policy framework
Rare Diseases: How European reference networks have improved the lives of rare disease sufferers immeasurably
26 Feb Health
Rare Diseases: How European reference networks have improved the lives of rare disease sufferers immeasurably
But more can, and must, be done to work together and take ERNs to the next stage, says EURORDIS HealthCare Director Inés Hernando.
Rare Diseases: How the new EU rare disease policy framework provides an opportunity to move from building infrastructures to measuring impact
26 Feb Health
Rare Diseases: How the new EU rare disease policy framework provides an opportunity to move from building infrastructures to measuring impact
‘Rare 2030’ Foresight Study highlights unmet needs and continued obligation to improve outcomes, explains EURORDIS Health Policy Director Anna Kole.
Rare diseases are not so rare
02 Mar
Rare diseases are not so rare
With rare diseases affecting some 30 million people in the EU, state welfare should be present in every Member State, providing the appropriate support to these individuals, argues Loucas Fourlas.