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    Articles tagged with: European Rare Disease policy framework
    Rare disease patients cannot be forgotten: a coordinated approach is needed Partner Content
    22 May
    Rare disease patients cannot be forgotten: a coordinated approach is needed
    This HAE Day, Hilde Vautmans MEP makes the case for a European Action Plan for Rare Diseases to support Europe's rare disease patients
    Championing change for rare disease patients in Europe: the case of hereditary angioedema Partner Content
    16 May
    Championing change for rare disease patients in Europe: the case of hereditary angioedema
    Rare Diseases: Towards a patient-centred EU Blood Directive Partner Content
    24 Feb
    Rare Diseases: Towards a patient-centred EU Blood Directive
    For rare disease patients who rely on plasma-derived medicinal products, supply has become the major safety issue
    Rare Diseases: How European reference networks have improved the lives of rare disease sufferers immeasurably Partner Content
    26 Feb
    Rare Diseases: How European reference networks have improved the lives of rare disease sufferers immeasurably
    But more can, and must, be done to work together and take ERNs to the next stage, says EURORDIS HealthCare Director Inés Hernando.
    Rare Diseases: How the new EU rare disease policy framework provides an opportunity to move from building infrastructures to measuring impact Partner Content
    26 Feb
    Rare Diseases: How the new EU rare disease policy framework provides an opportunity to move from building infrastructures to measuring impact
    ‘Rare 2030’ Foresight Study highlights unmet needs and continued obligation to improve outcomes, explains EURORDIS Health Policy Director Anna Kole.
    Rare diseases are not so rare
    02 Mar
    Rare diseases are not so rare
    With rare diseases affecting some 30 million people in the EU, state welfare should be present in every Member State, providing the appropriate support to these individuals, argues Loucas Fourlas.
    A monthly magazine packed with timely features, news analyses and opinion articles on EU policy.
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