Transforming Rare Diseases

A special supplement looking at how Europe can come together to find solutions for people suffering from a rare disease

The hope of the 30 million people living with a rare disease in Europe is that in 2022 policymakers, both at national and European level, will work towards the adoption of a European Action Plan for Rare Diseases.

In this supplement we highlight European Rare Diseases Day 28 February, and look at how Europe can come together to transform the lives of those people suffering from a rare disease. The timing of this special publication is very important since France has included dealing with rare diseases as part of its EU’s Presidency Agenda.

Inside we bring together leading stakeholders and policymakers based both in Brussels and Paris, contributors include European Commission Director General for Health, Sandra Gallina, President of the rare diseases study group in the French Assembly, Phillipe Berta, and leading EU policy makers David Lega, Frederique Ries, Kateřina Konečná, and Cindy Franssen.