Rare Cancers Europe: 10 years of cooperation to improve care for cancer patients

Kindly hosted by Alojz Peterle MEP and Lieve Wierinck MEP


View event programme here.

European Parliament | Room A3E-2 | 12:00 - 14:00


On Tuesday 25 September, Rare Cancers Europe is organising an event in the European Parliament to celebrate 10 years of active work in this field and to take stock of its achievements in addressing rare cancers as well as discussing the way forward in tackling the challenges that persist.

This event will highlight the EU milestones in addressing rare cancers and particularly the establishment of the Joint Action on Rare Cancers and of the European Reference Networks on cancer while presenting the role of Rare Cancers Europe in the process that lead to these achievements.

The discussion will address the current challenges faced by the European Reference Networks and what more needs to be done to improve standards of care and reduce administrative barriers for patients crossing borders. Furthermore, specific attention will be given to addressing the problems of generating and exploiting evidence on rare cancers and the potential impact of the EU draft Regulation on health technology assessment (HTA) on improving treatment options for rare cancer patients while helping safeguard the sustainability of healthcare systems.

This event will also be an opportunity to discuss the European Commission’s upcoming report on the implementation of the Cross-Border Healthcare Directive and assess how countries across the EU have implemented its provisions and allowed patients to benefit from them. 

Speakers include:

  • Alojz Peterle MEP (EPP, Slovenia)
  • Lieve Wierinck MEP (ALDE, Belgium)
  • Cristian-Silviu Bușoi MEP (EPP, Romania)
  • Annika Nowak, Member of Cabinet of the Commissioner for Health and Food Safety, Vytenis Andriukaitis
  • Ortwin Schulte, Permanent Representation of the Federal Republic of Germany to the EU
  • Francesco de Lorenzo, Rare Cancers Europe & European Cancer Patient Coalition
  • Kathy Oliver, Rare Cancers Europe & International Brain Tumour Alliance
  • Paolo Casali, Rare Cancers Europe & Joint Action on Rare Cancers

To register your interest, please contact: EUevents@dodsgroup.com | 0044 207 593 5560 | 0044 207 593 5672

Rare Cancers Europe, a multi-stakeholder initiative, founded by the European Society for Medical Oncology (ESMO) in 2008, works to overcome the unique challenges faced by the rare cancers community from the perspectives of patients and their caregivers, physicians, researchers, governments and the industry. It’s parent organization, ESMO, is Europe’s leading non-profit medical society, representing over 18,000 members from over 150 countries.

For further information, please visit:




Follow the conversation: #RCE10thanniversary, @_rarecancer, @myESMO



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Date & time
25/09/2018 10:00:00 - 25/09/2018 12:00:00
European Parliament | Room A3E-2
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